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Ryan Tindall

My Story

Ryans epilepsy journey began after what he  thought was an unexpected seizure in his sleep, he was then diagnosed with Epilepsy, and what he didn’t realize was that other than the seizures it would have a profound effect on his life. Ryan fell into a state of depression, yet continued to try to prove to the world that epilepsy won’t effect him in any way and that he could keep going like nothing has changed.  Ryan was wrong when epilepsy was destroying him inside and out where he was drinking heavily after work, always wanting to be the last “man” standing, this would continue for nearly 7 years, alienating him from some of my closest friends and almost destroying his relationship.


When you have epilepsy, it is more than losing your driving license, more than having a seizure or the questions/ assumptions you face what people don’t understand about epilepsy is the unexpected nature of it all, it’s the burden you feel on those around you and the lower status in the world you feel you have. Epilepsy has added pressure in life and he tries his best too cover everything up and show the world he is ok. The look you get when you wear a bracelet, the questions you get when you show a disabled rail pass or the way you avoid it during an interview to the fear you have during an occ health review. 


So what happened?  Ryan was lucky, he had friends that made him realize he needed counseling, his wife that was there to support him that would listen and reminded him he wasn’t a burden and that he wasn’t alone. After years of treatments, Ryan looked at alternative options and that’s where health a fitness have come into his life. Running/ Cycling has strangely been a savior for him, it allows him to destress and relax. Stress was often a trigger for Ryan but he found running as his outlet. 


Ryan stared running in march 2020, mainly for health but he was also able to raise money for an epilepsy charity. At the time he couldn’t run 3km without stopping, but he used running and a change in diet to try to take control of his seizures, get his confidence back and to hopefully avoid brain surgery! Which after years of medication changes and attempts it looks like surgery will be unavoidable but Ryan knows it won’t stop him. 


Also, running for charity allows Ryan to prove that although he is disabled, he can still make a difference, and open conversations about epilepsy with those that may not have asked it before. And once Ryan had done 2 marathons it was time to run an ultra and after an ultra well surely 4 marathons and an ultra in the same month was the only option? Right? So until Ryans brain surgery is either confirmed or denied he will keep going!

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